Shine provide specialist support, advice and information throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional health and social care staff.
Shine’s Support and Development workers can be contacted to provide support, information and advice on / to:
• Benefits, finances and funding
• Bowel and bladder issues, incontinence, staying healthy (via our medical advisors)
• Shine’s Home Delivery service for continence products
• Local support groups, events, peer support, health hubs
• Education for members attending schools, colleges and universities
• Folic acid and pregnancy advice
• Support for carers / parents who look after someone with spina bifida and/ or hydrocephalus
• Professionals including GP’s, health and social care staff, employers, schools, colleges about how these conditions can be managed.
Who do we support
Anyone who has spina bifida and / or hydrocephalus
Parents who have a child with spina bifida / and or hydrocephalus
Carers and families who live with or care for someone with spina bifida and/ or hydrocephalus.
Professionals providing support such as health and social care staff, educational staff, employers
Anyone who is expecting a baby with spina bifida